Sunday, October 5, 2008
Sleeping sisters
This was Saturday morning at about 5:00 AM. I had to use the flash right in their faces because it was so dark but they were both so cozy they never knew the difference.
First sleepover
One of my best friends is very unexpectedly expecting her 4th baby. So she and her hubby wanted to take a night together to plan and prepare and of course just be together alone! So her youngest (and one of Anna's best friends) Elise came to our house last Friday night and stayed the whole night. This was our first experience with the whole sleepover thing. Although being parents of two little girls I don't think it will be our last! =)
We had a GREAT time. The girls made cookies with pink icing and pink sprinkles... pink what else!!! They strung beads and made some very beautiful necklaces. Daddy took them to the playground across the street and after all that they were worn out and actually went to bed early.
YAY for good friends and super fun sleepovers!!
Lunch on the square
The girls and I went to Southlake Town Square a couple of weeks ago and got Corner Bakery and sat in the park area to eat. We had a great time watching all the people shop and stroll. Plus the weather was AWESOME! I love spending time with my gals!
Thursday, October 2, 2008
Thank you!
Jimmy and I want to say thank you so much to everyone who has reached out to us with such kind emails and posts of love and prayers as we deal with this diagnosis. It is incredible to know that we have so many amazing friends and family who care so deeply for our little Sereney!!
We hope to find out in the next week or so when we will be able to go to the NF clinic for testing. We will update as things progress.
On a very good note, the doctor did tell us that since Serene has shown so many signs of normal development to this point... pulling up, walking along the couch, saying "da da, ma ma, ba ba" and various other things that those are GREAT signs. Speech development can be one of the first signs that there is a very serious problem and at this point Serene's speech is developing right on schedule. It is little things like this that keep our hopes VERY high that she will only be very minimally affected by NF.
Just a a mother speaking about her child I have to say how incredibly infectious Serene's little smile is. Everywhere we go people comment on how happy she is. Here is one I hear there all the time.....(only in Texas would you hear this).... "that's the SMILENEST baby I ever saw". I don't even know how to spell that word but I know what they mean because she is. She is such a gift!!
We hope to find out in the next week or so when we will be able to go to the NF clinic for testing. We will update as things progress.
On a very good note, the doctor did tell us that since Serene has shown so many signs of normal development to this point... pulling up, walking along the couch, saying "da da, ma ma, ba ba" and various other things that those are GREAT signs. Speech development can be one of the first signs that there is a very serious problem and at this point Serene's speech is developing right on schedule. It is little things like this that keep our hopes VERY high that she will only be very minimally affected by NF.
Just a a mother speaking about her child I have to say how incredibly infectious Serene's little smile is. Everywhere we go people comment on how happy she is. Here is one I hear there all the time.....(only in Texas would you hear this).... "that's the SMILENEST baby I ever saw". I don't even know how to spell that word but I know what they mean because she is. She is such a gift!!
Saturday, September 27, 2008
Neurofibromatosis (NF)
A word I was totally unfamiliar with just 48 hours ago and one I have come to know VERY well since Thursday.
At about 6 months old I discovered some birthmark looking spots on Serene's legs and then about 7 or 8 more on other parts of her body. It seemed strange so at her 6 month appointment I asked her doctor about them. She told me to keep a watch on them to see if they increased in size and to see if any new ones appeared. After watching for a couple of months we were referred to a pediatric neurologist and had an appointment with him this past Thursday. Jimmy and I were both aware that these spots could be an indication of NF but we just didn't think it could possibly be happening to Serene.
Long story short, the doctor confirmed that she does in fact have NF. He referred us to the NF clinic in Fort Worth where we will take her for DNA testing in the next few weeks. NF is a genetic disorder found in 1 in 3000 - 4000 babies.
Please pray for Serene and for us as we deal with the beginning phases of this. This is just something you never think you will have to deal with and has really overwhelmed us. God is very faithful though and is giving us so much comfort as we seek Him.
You can read more about NF at www.ctf.org
At about 6 months old I discovered some birthmark looking spots on Serene's legs and then about 7 or 8 more on other parts of her body. It seemed strange so at her 6 month appointment I asked her doctor about them. She told me to keep a watch on them to see if they increased in size and to see if any new ones appeared. After watching for a couple of months we were referred to a pediatric neurologist and had an appointment with him this past Thursday. Jimmy and I were both aware that these spots could be an indication of NF but we just didn't think it could possibly be happening to Serene.
Long story short, the doctor confirmed that she does in fact have NF. He referred us to the NF clinic in Fort Worth where we will take her for DNA testing in the next few weeks. NF is a genetic disorder found in 1 in 3000 - 4000 babies.
Please pray for Serene and for us as we deal with the beginning phases of this. This is just something you never think you will have to deal with and has really overwhelmed us. God is very faithful though and is giving us so much comfort as we seek Him.
You can read more about NF at www.ctf.org
Saturday, September 13, 2008
Watching the rain
Due to the rain we spent the day indoors. At one point I walked into the study to find both girls watching the rain outside the window.... precious!
Monday, September 1, 2008
At the farm
We get fresh goats milk from a little farm up the road so today when we went to get our milk and veggies we decided to look at all the animals. We've done this lots of times but today I actually got some pictures!
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