Jimmy and I want to say thank you so much to everyone who has reached out to us with such kind emails and posts of love and prayers as we deal with this diagnosis. It is incredible to know that we have so many amazing friends and family who care so deeply for our little Sereney!!
We hope to find out in the next week or so when we will be able to go to the NF clinic for testing. We will update as things progress.
On a very good note, the doctor did tell us that since Serene has shown so many signs of normal development to this point... pulling up, walking along the couch, saying "da da, ma ma, ba ba" and various other things that those are GREAT signs. Speech development can be one of the first signs that there is a very serious problem and at this point Serene's speech is developing right on schedule. It is little things like this that keep our hopes VERY high that she will only be very minimally affected by NF.
Just a a mother speaking about her child I have to say how incredibly infectious Serene's little smile is. Everywhere we go people comment on how happy she is. Here is one I hear there all the time.....(only in Texas would you hear this).... "that's the SMILENEST baby I ever saw". I don't even know how to spell that word but I know what they mean because she is. She is such a gift!!