We just found out yesterday that Serene will have her first appointment at the NF clinic on JANUARY 13..... Yes, that's right, not until JANUARY... UGH! We are a little annoyed to say the least and I will also tell you that Cook Children's has been anything BUT helpful to deal with in this process. I know many people who have had great experiences with them but for us that has not been the case.
We are praying that anyone else we deal with will be friendly and kind and even helpful!!
Thanks again for all your prayers! We feel them!